Hello Friends and Family,

It’s that time of year again. A time to celebrate those with Angelman Syndrome and help bring us one step closer to discovering a cure! Our family is heading to Salt Lake City again to participate in the Angelman Syndrome Foundation National Walk on May 17^th.  This is a great opportunity for us to celebrate Ridge and all of his remarkable accomplishments this past year. Each and every day Ridge continues to amaze us with the things he is learning.  From learning to sit-up, to crawling, to dancing in weddings in his walker Ridge continues to demonstrate there is no milestone that is outside his grasp.  In addition, he has developed a magnetic personality that makes us smile every day.

When looking at Ridge’s numerous achievements in such short amount of time, one can’t help but draw parallels to what has been accomplished in Angelman Syndrome research. This disorder has been named, the underlying genetic issue discovered, and remarkably it has been cured in a mouse model. The pace at which this set of events has occurred is a world record by medical research standards, but for progress to continue, additional funding must be raised.

This year we have decided to raise money for the Foundation for Angelman Syndrome Therapeutics (FAST).  We were fortunate to have been able to participate in the FAST Global Summit this past December and it was an outstanding event.  This foundation’s goal is 100% focused on funding research projects that may someday change our son’s life.

So, we are asking our friends and family to again please donate to the cause if your heart so moves you, read and learn about Angelman Syndrome, and then spread awareness, because awareness leads to funding, and funding to a cure.

 

Click HERE to support team Ridge!