I made it past the 1 year anniversary of Ridge being diagnosed with Angelman Syndrome. As I think back and remember that day, most of it being a blur, but I do remember the thoughts going through my mind.
I remember thinking......
how can this be happening to me
my life will never be what I dreamed it to be
how can I take care of an adult that is handicapped
there is a chance he will die
what will this do to Rory's life
how is Matt going to handle the news
what will happen to him after I die
where will I be when he has his first seizure
I wasn't sure what I was supposed to be feeling or thinking that day, but the perfect life I dreamed of was GONE.......
OR was it?
Over the past year I have been very lucky to get to go to Salt Lake for the National Angelman Walk, Chicago for the Annual FAST Gala and connect with people all over the world through FB. They have shown me that life is enjoyable when living with an angel. That life with an angel isn't all bad. People living with Angelman Syndrome are amazing and make the world a better place. Ridge is showing that to me regularly these days. He has really started to bloom. His personality is coming out in full force and I am privileged to get to be his MOM! I can't wait to see what great things he is going to do in his life!
One year later these are some of the thoughts going through my mind.....
who else will this journey have me meet.
what will it be like when they find therapeutics to help these kiddos
what's the 1st vacation am I going to take Ridge on
what fundraisers can I do to spread awareness and raise money towards a cure
how many people are going to be touched by Ridge's amazing smile
Rory will have an amazing experience to teach her the importance of life
what is my next travel experience Angelman Syndrome is going to send me on
One year later I can finally say I am excited to see what direction my life is going to go. I am back in the game of life and being a mom. I am excited to start dreaming of the future again. Because the future looks BRIGHT!
Don't forget to wear blue on FEBRUARY 15th to celebrate INTERNATIONAL ANGELMAN DAY!
Please visit cureangelman.org to learn more about AS or give a donation!
Loving life!
So pretty!
On the move (slowly, but surely)
Great day with Rory!
Hungry
Is it bed time yet?
