" I get by with a little help from my friends"

      It has been a little over a month since we received the diagnoses and I would say we are doing pretty well! Ridge is finally healthy and starting to learn new things. He has learned to feed himself crackers and hold his own bottle. He also has discovered his feet, which he thinks are soooo cool!!!! Ridge also finally started to babble. Music to my ears.

 

 

  Speaking of music, The Beatles said it almost perfectly when they sang, "I get by with a little help from my friends." I would also add family to that. Matt and I are truly touched at the love and support we have received. The regular phone calls checking in with us, the inspirational text messages. The meals brought over while Ridge was in the hospital. Our families who took many days off work to take a shift and sit with Ridge and took the time to entertain Rory. The visitors who came to help pass the time while we sat in the confined walls of our hospital room. I will never look at my mailbox the same. I will be having an awful day (usually crying in the car) and I will pull up to the mailbox to find cards saying someone is thinking of us; or gifts with an inspirational story. I will run into someone in the mall and they will give me a hug or hold my hand or just give me that look! All of these things makes me feel like this will all be ok. It helped me push through the worst month of my life. So, THANK YOU, to all of you!!!! It truly will take a village to raise Ridge and we are lucking to be a part of one!

Rory and Ridge watching cartoons together before bed

 

 

Easter bunny breakfast

March comes in like a LION...

We had been home from the hospital for 5 days and ended up in the ER Saturday night. Ridge had a fever all day and was screaming non stop, so I decided it was time to take him in. Now he has an ear infection. I hope this little guy can catch a break, so he can get his strength back and start smiling again!

Over the past month,  Ridge has seen numerous doctors and nurses and I am amazed at how many of them have never heard of Angelman Syndrome. I have decided it's my job to teach our small town all about AS.

So, with the use of this blog and being out in the community I hope we can educate people about Angelman Syndrome and help them understand that its ok to have a son with disabilities.

Matt and I have decided to not let this diagnoses change the way we raise our kids. We still plan on helping our kids be the best the they can be and to be positive role models in society.